Tips from a Teen for Self-Advocacy at School

By Christina (Julie570 in the forum)

Originally Published in Pediatric Network News, February 2004

In the classroom:

• Acquaint teachers with your needs and accommodations. A lot of people don’t know much about CFIDS/FMS, so you may need to educate your teachers a little. Make an effort to form a good relationship with your teachers, and they’ll be more than willing to help you.
  
  
• Speak up. This can be difficult if you’re shy, but it’s essential because no one can do it for you. Learn to communicate your needs and don’t hesitate to ask for something.
  
  
• Don’t be afraid to be different. A lot of young people are reluctant to use their accommodations because they don’t want to stick out, but don’t put unnecessary strain on yourself trying to be ‘normal’. You’d be surprised by the number of kids who won’t even notice many of the things you do.
  
  

In meetings:

• Be prepared. Think through what you want to say beforehand. You may want to write down the things you want to discuss so you don’t forget.
  
  
• Speak up. Once again, don’t be shy. People are impressed by students who take interest in their education, and it’s better for them to hear about your needs from you than from your parents.
  
  
• Take notes. With brainfog, it’s useful to jot down what important things have been said at the meeting. Also, in certain situations it’s good to have a record of your interactions with the school.
  
  

Are you a teen with a tip to share in future newsletter issues? Write to us to let us know! Send your tip to rebecca@pediatricnetwork.org and we'll pass it on to Christina for consideration for our newsletter.

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