"So if in reading this you see yourself, please know you are not alone." ~ Mary

Parenting and Family Life

• Tips From Other Parents
  
• Emotions of Being a Parent and Caregiver
  
• Young Children
  
• Adolescence and Increasing Independence
  
• Activity Level and Decision-Making
  
• Friendships and Socialization
  
• School
  
• Family Vacations
  
• Holidays and Special Occasions
  
• Medical Experiences
  
• Hopeful Stories
  
• Creating or Running a Support Group
  
• Family Life
  

Tips From Other Parents

• Shanon's Suggestions: Great coping tips for parents for educational, medical, and parenting issues   by Shanon McQuown
  
  
• Tips from Parents with CFS for Surviving the Preschool Years
  Lyndonville News January 2000
  
  

Emotions of Being a Parent and Caregiver

• The emotions of being a CFS parent; A "lunch club" at school for a child with CFS.
  Lyndonville News September 1999
  
  
• My Life As a Parent of a Child with CFS
  Lyndonville News February 2000
  
  
• Parenting When Life Gets Rough
  Lyndonville News March 2001
  
  
• Caregivers Surviving Winter Flare-ups
  Pediatric Network News February 2004
  
  
• My Journey With You
  Lyndonville News November 2001
  
  
• Fibromyalgia: A Mom's Perspective  by Kathy
  
  
• What Does It Cost You?
  by Cyndi Volkers   Youth Allied by CFIDS Summer 1997
  
  
• Homegrown Heroes
  by Lynn Vanderzalm   Youth Allied by CFIDS Spring 1997
  
  
• The Challenges of Parenting a Child with CFIDS
  by Lynn Vanderzalm   The CFIDS Chronicle Winter 1996
  
  
• Caregivers coping with chronic illness: Tips gathered from around the world National Dysautonomia Research Foundation
  
  
• Presentation About Caregiving - Its emotional and social impact, and how to cope - by David Levy, JD National Dysautonomia Research Foundation
  
  
• Fun Foundations and Camps   - Arrange a break for caregivers or the whole family   - Community-wide forum discussion in the Coping Tips & Tricks section  
  
  

Young Children

• Kids Diagnosed Under Age 10: Special Considerations  - Private forum section for parents - Your chance to connect with other parents whose young children have FM, CFS, or OI
  
  
• Tips from Parents with CFS for Surviving the Preschool Years
  Lyndonville News January 2000
  
  

Adolescence and Increasing Independence

• Hands-on/Hands-off Parenting
  by Lynn Vanderzalm  Youth Allied by CFIDS Fall 1996
  
  
• Adolescents and CFS: A Young Person's and a Parent's Perspective
  Lyndonville News September 2000
  
  
• One parent's philosophy on raising kids with CFS
  Lyndonville News January 1999
  
  
• Setting Limits: Teaching a child with CFIDS to take responsibility
  by Mary Robinson  The CFIDS Chronicle, May/June 1999
  
  
• A Mother's Perspective on Fibromyalgia and Activity Levels   TeenFibroSupport.org
  
  
• Parenting Post-Secondary Students with Disabilities: Becoming the Mentor, Advocate, and Guide Your Young Adult Needs
  National Center on Secondary Education and Transition
  
  
• Chronic Illness in Adolescence: Crisis or Challenge? by Maureen Brownlow, Social Worker, Izaac Walton Killam Hospital for Children, Halifax, Nova Scotia Originally published in Lupus Canada Bulletin, Volume 3 No. 1, Spring 1993
  
  

Activity Level and Decision-Making

• Adolescents and CFS: A Young Person's and a Parent's Perspective
  Lyndonville News September 2000
  
  
• One parent's philosophy on raising kids with CFS
  Lyndonville News January 1999
  
  
• Sorting out the psychological from the physical, and trusting your child
  Lyndonville News September 2000
  
  

Friendships and Socialization

• Helping our children maintain friendships
  Lyndonville News March 1999
  
  
• The emotions of being a CFS parent; A "lunch club" at school for a child with CFS.
  Lyndonville News September 1999
  
  
• Planning Summer Get-Togethers
  Pediatric Network News, February 2004

School Issues

• The School Success section of our website includes many articles for parents, teachers, students, educational psychologists, and others. It will help you learn about the impact of these conditions on K-12 and college education, and links to many special education law and postsecondary education resources.
  
  
• Planning Ahead for Next School Year
  Lyndonville News May 1999
  
  
• Gearing Up for School
  by Lynn Vanderzalm  Youth Allied by CFIDS Summer 1996
  
  
• Parents Share Ideas for Educational Planning
  Lyndonville News September 2001
  
  
• Learning On the Road Less Taken
  by Linda Sillitoe   Youth Allied by CFIDS Winter 1997
  
  
• Attitude, the Gateway to Services
  by Lynn Vanderzalm  Youth Allied by CFIDS Fall 1997
  
  

Family Vacations

• Taking a Vacation When Your Child Has CFS
  Two columns from Lyndonville News July 1999
  
  
• Disney - A Vacation of a Lifetime
  Lyndonville News May 2001
  
  

Holidays and Special Occasions

• Surviving the Holidays
  Lyndonville News November 1999
  
  

Medical Experiences

• The Medical Articles section of our website provides research, diagnostic, and treatment information about CFS, FM, NMH, POTS and related conditions.
  
  
• Diagnosing CFS in Children: One Parent's Perspective
  Lyndonville News July 2000
  
  
• Depression and a Success Story
  Lyndonville News November 2000
  
  
• Physical Therapy
  Lyndonville News July 2001
  
  
• Parenting When Life Gets Rough
  Lyndonville News March 2001
  
  
• The November Factor (When many have relapses)
  Lyndonville News November 1999
  
  
• The Seattle AACFS Conference: My Perspective
  Lyndonville News January 2001
  
  
• Why Your Doctor May Not Know About CFS
  Lyndonville News May 1999
  
  
• Sympathetic Doctors Do Not Affect Long Term Illness Outcome
  Lyndonville News May 2001
  
  

Hopeful Stories

• Research to Remission to Recovery?
  Lyndonville News March 2000
  
  
• Depression and a Success Story
  Lyndonville News November 2000
  
  

Creating or Running a Support Group

• Support Groups and Networks lists directories of support groups regionally and online, and provides tips and inspiring stories for hosting a support group meeting or a social get-together for youth and their parents.
  
  
• Running a Support Group for Youth and their Families
  Lyndonville News May 2000
  
  

Family Life

• Stabilizing the Family Mobile
  by Lynn Vanderzalm  The CFIDS Chronicle Fall 1995
  
  
• CFIDS and the Family: Why have family meetings?
  by Sharron Fishman, MA, LPC  The CFIDS Chronicle Spring 1992
  
  

Home	E-mail Group	Articles	Links
The Pediatric Network is run by Mary Robinson and Rebecca Moore Leibowitz. Our focus is limited to our supportive e-mail group. Although we no longer publish a newsletter, an archive of our articles and resources is available online. We encourage you to ask your health care provider about the newest medical information and how it may apply to you.

Disclaimer: The views in this website and forum are the feelings and opinions of the individual authors and do not necessarily reflect all of the current theories that are being explored and published. Ask your doctor or other health care provider about all medical information that you consider applying to your situation, including the information you read in our website and forum. We take no responsibility for the decisions you or your family members make about medical care. It is up to you to verify that the information you read is correct and applies to your unique situation.