for Chronic Fatigue Syndrome, Fibromyalgia, and Orthostatic Intolerance
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May 8, 2003

Dear Friend of the Pediatric Network,

The Pediatric Network for CFS, FM, and OI officially opened its doors September 1, 2002. Its growth has been exciting: as of May 1, 2003 our forum is 127 members strong with an average of 906 daily visits. As we continue reaching out and plan for the coming year, we're turning to your family and our other supporters, hoping that you will lend a hand to help us keep growing.

Our network was founded as a community for people interested in conversing about all the angles of pediatric CFS, FM, OI. It has grown quickly into a web reserve of hundreds of resources addressing everything from medical to educational issues, to coping tips and independent living. Whether you are a parent of a child with this illness, a young person with the illness, a medical professional, or an educator interested in helping a child you have come to the right place. We hope you have found our site and forum helpful.

The Pediatric Network is a made available due to the volunteer efforts of its founders, Rebecca Moore and Mary Z. Robinson. It is kept strong due to the ongoing support of its members, our volunteer moderators and our regular posters who share their lives on a daily basis to cope themselves and to help others struggling with these illnesses. The satisfaction and joy that we, the founders, experience from this venture has been tenfold. But like all worthwhile causes it is not free of financial need.

In the early days of the Network we donated not only our time and resources but also our money to fund the birth of the Pediatric Network. The profits from the sale of the book A Parents' Guide to CFIDS have also helped us to fund this past year, as well as the generosity of our members on Ezboard who have donated to the Community Chest. But donations through Ezboard ONLY go to paying for the forum, not to the cost of the website or to future outreach efforts. We would like to be able to mail some of our brochures and flyers to doctors' offices and do a little outreach offline, but this too costs money. By raising $400-$500 this spring, we can fund the Pediatric Network for a year. We are turning to you, our members and your friends and families to help us fund this place that has become a lifeline to so many of us.

We realize that this is a difficult time financially for many, and that the expenses of a chronic illness in your family can be insurmountable. The Pediatric Network is a free service, and will remain so. We welcome all to join us and reap as many benefits as you can gain from our pages and from your personal contacts in the forum. But if you find that there is a little spare cash, and you would like to help us out to ensure the Network will be there next year and in the future, please consider even a small contribution to help support and sustain our efforts. You may consider one of the following levels of support:

____$5.00-$10.00   Contributor

____$20.00    Friend

____$40    Supporter

____$50.00 +    Benefactor

Please let us know whether you would like to be thanked on the website or if you prefer to give anonymously. Donations may be made by going to the website and clicking on Contribute and Donate through Pay Pal, a secure website that accepts credit card donations. Or, you can simply mail your check or money order to:

Pediatric Network
C/O Mary Robinson
507 Park Avenue
Medina, NY 14103

With CFS/FM Awareness Day right around the corner on May 12th this may be a good way to offer your visible support to this worthy cause. Please feel free to share this letter with your family and loved ones. If this is not a good time for you to be able to donate, please know how much we appreciate your support of the Pediatric Network. If you are a regular poster, or a regular reader, or you have only visited a few times but share our resource with those in need, We Thank You! We couldn't do this with out your support. Our hope is for the future when our services will no longer be needed, because an understanding and cure for these illnesses will be found.

Warmly Yours,

Mary & Rebecca

Mary Z Robinson & Rebecca Moore
Co-founders of the Pediatric Network for CFS, FM, and OI

Forum: http://pub96.ezboard.com/bpediatricnetwork
Main Website: http://www.pediatricnetwork.org




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Disclaimer: The views in this website and forum are the feelings and opinions of the individual authors and do not necessarily reflect all of the current theories that are being explored and published. Ask your doctor or other health care provider about all medical information that you consider applying to your situation, including the information you read in our website and forum. We take no responsibility for the decisions you or your family members make about medical care. It is up to you to verify that the information you read is correct and applies to your unique situation.