Advocacy Resources for
Youth and Parents Coping with Chronic Illness and Disability
Become a Youth
Advocate
Be Trained as a
Parent Advocate
Organizations
Advocating for Kids with Disabilities
Legal Assistance
Become a Youth Advocate!
Be trained as a parent advocate!
- Learn how to be an advocate for your child with CFIDS in
A Parents' Guide to CFIDS, the book coauthored by forum cofounder, Mary
Robinson, with David S. Bell, MD, Jean Pollard, Tom Robinson, and Bonnie Floyd. Read a
review of
the book or purchase it
from Amazon.com. The royalties from sales of this book help support this
website!
- Parent Training and Information
Centers - centers in each state offer training to help parents participate more
effectively with professionals to meet their kids' educational needs
- Parent Advocacy Coalition for Educational Rights (PACER
Center) - provides assistance to families and professionals interested in
disabilities through materials and workshops on providing a free, appropriate
education to all children
- Advocates Across America - dedicated to assisting
and training families, educators, providers, and other professionals to
effectively coordinate resources and services for children with special needs
- Family Resource Center on Disabilities -
includes parent training on advocacy and transition planning
- Families and Advocates Partnership for Education -
federally funded project links families, students, advocates with info about the Individuals
with Disabilities Education Act (IDEA)
- Parents Engaged in Education Reform -
a federally funded project to increase participation of children with disabilities,
their parents, and their organizations in school reform efforts
- Consortium for Citizens with
Disabilities Education Task Force - monitors and advocates for special education
legislation and regulations
- Center for Law and Education - offers training
to parents, students, community members, and educators;
assistance to attorneys and advocates representing students and parents;
policy analysis and policy drafting; staff development; assistance in dealing with state
and federal policy makers; and access to extensive publications on program implementation
- Exceptional Parent Magazine
Organizations Advocating for Kids with
Disabilities
- Communities Can!
- Information about how communities have become supportive places for
children with disabilities
- Family Voices - a national, grassroots
clearinghouse for information and education concerning the health care of children
with special health needs.
- Institute for Child Health Policy - Researches,
evaluates, formulates, and advances health policies, programs, and systems that
promote the health and well-being of children and youth in the state of Florida and
nationally
- KidNeeds.com - a worldwide resource that
provides children with special needs, families and other caregivers with access
to resources such as professional opinions on public health policy initiatives
and information about
local, statewide and national advocacy efforts
- Self Advocates Becoming Empowered - working to
make self-advocacy training available in every state and school
- National Organization on Disability
Legal
Assistance
Return to the Advocacy Page
Return to the School Page
|
